Joseph Richard Kindregan

"Joe" Age 27 Of Springfield, Virginia passed away while wrapped in the embrace of his parents and his sister on Saturday, July 18, 2015. He was born in Fairfax, Virginia on February 4, 1988. Joe graduated from Falls Church High School in 2007. For 27 years, Joe had been battling an extremely rare disease called Ataxia Telangiectasia (A-T for short). A-T is a rare genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a high rate of cancer. A-T affects a large variety of systems in the body, causing symptoms that affect health and daily living. Please visit http://www.atcp.org/ to learn more about this merciless disease. Joe fearlessly faced his illness with poise, strength of mind, bravery, dignity, grace, courage and a compelling sense of wit. He fought hard and beat many odds. He met some very interesting people along the way, and rallied them to join his cause, leading him to Congress, publications and talk shows. In 2012 Joe wrote a song about his life and Country star Brad Paisley recorded it. As always, all proceeds going to further research to find a treatment or cure for A-T. Joe remained an advocate for the A-T Children's Project to the end. He strived always to make a difference with his life despite the challenges, and he succeeded in spreading the word about this horrible disease. Sadly, it seems as though it is only after society grasps that we have a limited time on earth -- and that we have no way of knowing when our time is up -- that only then do we begin to live each day to the fullest, as if it was the only one we had. Joe Kindregan was a living example bringing to light the truth that the journey is the reward! It is not length of life, but depth of life, that truly matters. Joe is survived by parents Thomas P. and Suzanne Kindregan of Springfield, VA; sister and brother-in-law Stacy Kindregan Bodani and Jason Bodani; nieces Lucy and Mallory Bodani; nephew Henry Bodani; aunt Mary Fontaine; aunt and uncle Jerry and Carolyn LaCamera; cousins Caitlin LaCamera, Elizabeth Fontaine, Lauren Shelton Gray, Tyler Gray, Brady Redman, Finnian Gray, and Emerson Gray.